Rare Epilepsy Network Data Dashboard - Datasets - RTI Data Catalog


#1

Taken from the REN website.

The Rare Epilepsy Network (REN) PPRN is an initiative created by and for patients with catastrophic rare epilepsies. The REN's goal is to build a patient-centered and -driven database designed to provide the patients and their families an opportunity to participate in research that will improve the lives and quality of care for people with rare epilepsies.


This is a companion discussion topic for the original entry at http://rtickan16.eastus.cloudapp.azure.com/dataset/rare-epilepsy-network-data-dashboard